Because SMA is not a well-known disease, we must take a pro-active
stand to educate ourselves and our communities about this devastating
disease. The following websites are organizations which provide
information and support for family and friends who have been affected
by Spinal Muscular Atrophy.
Families of SMA
In 1984, a small group of parents across the country banded together
to support, comfort and educate each other about the devastating
disease affecting their children; Spinal Muscular Atrophy. Their
purpose was twofold—to support families affected by SMA and
to fund research leading to a treatment and eventually, a cure.
Families of SMA has grown to an international network including
30 volunteer Chapters throughout the United States
This is a national organization committed to accelerating a cure
for spinal muscular atrophy (SMA), the number-one inherited killer
of children under two. On this site, you will find up-to-date reports
from the research front. And you will find ways that you can become
involved in this fight yourself.
The Gwendolyn Strong Foundation (GSF) seeks to raise awareness about
and fund research for Spinal Muscular Atrophy (SMA), the leading
genetic killer of young children, and support those impacted by
SMA and other life-altering diseases.
Hope & Light
Through faith, hope, and love, the Hope and Light Foundation endeavors
to eliminate Spinal Muscular Atrophy, empower our community, and
create a foundation stone upon which cures for all childhood genetic
diseases can be built.
for Madison & Friends
Miracle for Madison & Friends is dedicated to raising money
to help OSU researchers find a cure for Spinal Muscular Atrophy
(SMA). This website is packed with information on SMA, including
ways to help find a cure, updates on research, merchandise to show
your support as well as pictures and stories about Madison and her
Our SMA Angels was founded in 1998 as a site dedicated to children
with SMA. Come meet more than a hundred children, read their stories,
see their faces. These little angels will touch your heart.
The original Spinal Muscular Atrophy (SMA) social network.
SMA Support Inc.
SMA Support Inc. was founded in 1999 as a non-profit, tax-exempt
501(c)(3) charity organization dedicated to providing support in
the form of equipment and supplies not covered by insurance to family,
as well as emotional, financial and informational support to friends,
individuals and caregivers on all aspects regarding the devastating
genetic disease Spinal Muscular Atrophy.
Sophia’s Cure Foundation is a non-profit 501(c)3 public charity
which was formed shortly after our daughter was diagnosed with Spinal
Muscular Atrophy. The foundation was created to assist in funding
for clinical research towards finding a cure for SMA and to offer
support to families affected by this disease by providing advocacy,
awareness, education and support.
Trust for Spinal Muscular Atrophy (JTSMA)
The Jennifer Trust for Spinal Muscular Atrophy was founded in 1985
as a support group for people with SMA and for their families. Since
then it has grown to have over 1,500 families as members, and to
be in contact with groups and families all around the world.
The Muscular Dystrophy
The Muscular Dystrophy Association is the source for news and information
about neuromuscular diseases, MDA research and services for adults
and children with neuromuscular diseases and their families.
The SMA Foundation
The mission of the Spinal Muscular Atrophy Foundation, a 501(c)(3)
tax-exempt foundation, is to accelerate the development of a treatment
or a cure for SMA, the number one genetic killer of infants and
toddlers. The Foundation is dedicated to preventing the death and
suffering of thousands of children whose lives depend upon increasing
research funding to fulfill the scientific opportunity to cure the