About SMA Angels
SMA Angels Charity is a 100% volunteer, non-profit charity dedicated
to fight in the battle against Spinal Muscular Atrophy ("SMA").
SMA is a devastating neuromuscular disease. In its most severe
form it is the "Number One Genetic Killer of Children Under
Two". At present there is no cure or treatment.
The charity was formed in 1999 when twins Cassidy and Skylar Swanson
were diagnosed with the severest form of SMA.
The goals of the charity are: to raise money for research devoted
to finding a cure or treatment for SMA, to provide funding for
medical assistance and better quality of life for children afflicted
with SMA and to increase awareness and education about SMA.
They were born on their Daddy’s birthday, they are beautiful
blue-eyed blond identical twins and they have a disease very few
people have ever heard of – Spinal Muscular Atrophy (SMA). The
girls were diagnosed at five months after it became apparent they
were losing strength. The diagnosis…. “they will
never sit, walk or stand and they will die before the age of two”.
Family and friends wanted to help and SMA Angels Charity was formed.
Cassie and Skylar have lived an amazing life and have defied the
odds. The girls reached the age of nine years old this year and
celebrated their birthdays at Disney World. They learned to talk
when their parents were told they never would. They learned to
use the computer and are very proficient playing with it. They
have been very involved with school and graduated from 3rd grade.
Cassie and Skylar have grown up to be happy little girls full of
personality and have shared their unconditional love with everyone
they have met. Cassie said she was a princess and dreamed of dancing
and living in a white castle.
On June 9th, 2006, Cassie left this earth to follow her dreams.
Cassie died suddenly of respiratory failure, which is the number
one cause of death in children with SMA. Cassie and Skylar have
touched many lives and have been an inspiration to all who have
known them. They are a beacon of strength, hope and courage in the
BOARD OF DIRECTORS
Wallette Widener, RN
President: Anne Meguiar
Vice President: Diane Sumerlin
Secretary: Kim Jarboe
Treasurer: Ruenett Parker
Dr. Eric Pearlman, MD
Neurology - Child
Anne & Ricky Meguiar
Becky & Brian West
Dana & David Swanson
Dawn & Bill Covert
Diane & Bubba Sumerlin
Marijoe & Chuck Sheffield
Renee & Billy Short
Rhonda & Troy Padgett
Tanya & Richie Meguiar
proud member of: