SMA Angels Charity - Joining together to fight Spinal Muscular Atrophy

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Joining Together to Fight SMA

Spinal Muscular Atrophy (SMA) is a devastating neuromuscular disease. In its most severe form it is the "Number One Genetic Killer of Children Under Two". At present there is no cure or treatment.

SMA Angels Charity is a 100% volunteer, non-profit charity dedicated in the fight against SMA. The charity began in 1997 when twins Cassidy and Skylar Swanson were diagnosed with the severest form of SMA. The main goals of the charity are to raise money for research and to improve quality of care for those with SMA.

SMA Angels Charity Supports SMA Research



Video in memory of Cassie Swanson
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SMA Angels Charity works to increase awareness and research for improved quality of care options for SMA patients. If you are a SMA patient or caregiver you can help by filling out the “Families Care To Share Questionnaire”.


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Song of Dreams CD - purchase
By Jana James
Songs of Hope, Strength, Faith & Love

SMN deficiency disrupts gastrointestinal and enteric nervous system function in mice
Published May 6, 2015 SMA Angels Charity funds $50,000 for Remarkable Research
GI issues and diet can be significant factors in the quality of life of SMA patients, but these symptoms have not been well studied. Dr. Kevin Foust and his team at Ohio State University are doing the first in depth study of GI function and SMA. His studies show that when the gene affected in SMA is deleted in mice, the cells of the gut nervous system malfunction. All of the symptoms observed in these mice models have also been noted in SMA patients. The GI symptoms can include reflux, delayed emptying of stomach contents and constipation. These studies are highly suggestive that GI symptoms may be a primary aspect of disease in patients and can impact their quality of life and represent significant concerns for the patients and caregivers. Our charity focuses on research to improve quality of care and quality of life for those with SMA. We are proud to partner with Dr. Foust in this effort. more detailsSMA Angels annual ball

Richmond Hill Reflections article

Thank You 2014 Sponsors:


Thank You Supporters:

Affordable Irrigation & More
Express Auto Group, Inc.
Barbara’s The Salon & Spa
Curry Dry Cleaners
Flying Fish Bar & Grill
GiGi’s Cupcakes
John Davis Florist
Kim Overstreet – SMA Angel
Matt Mattingly - Auctioneer
Meguiar, Inc.
Plantation Lumber & Hardware
O.C. Welch
Richmond Hill High School Baseball Team
Richmond Hill Elementary School – 2nd Graders
RHHS Young Republicans
R Widener & Co.
Savannah Marriott Riverfront Staff
South State Bank Employees Richmond Hill Branch